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Wilms Tumor & Other Renal Tumors Information

American Cancer Society

Individual topics may be found by entering a word in the search field in the upper right corner. The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

National Cancer Institute

The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

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Childrens' Cancer Support Groups

Bear Necessities Pediatric Cancer Foundation, Inc

Non-Profit organization founded by Kathleen A. Casey in memory of her eight year old son, Barrett "Bear" Krupa, who died after a courageous five and a half year battle with Wilms Tumor. The Foundation is dedicated to the fight against pediatric cancer by improving the quality of life for pediatric cancer patients and their families while furthering advancements in research. E-mail

Pediatric Oncology Resource Center

A web site for parents, friends, and families of children who have or had childhood cancer. This resource center was created by and for people who know young people who are recovering from cancer. Most of the contributors to this site are members of the ACOR pediatric cancer mailing lists, especially ped-onc, ped-onc-survivors, and ALL-kids.

National Children's Cancer Society

The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education.

Candlelighters Children's Cancer Foundation

The Foundation is committed to a mission of providing support, education and advocacy for children and adolescents with cancer, survivors of childhood/adolescent cancer, their families and the professionals who care for them. E-mail

Children's Cause for Cancer Advocacy

A non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors. E-mail

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Financial Assistance for Cancer Care

Cancer Survivors Fund

A non-profit organization whose mission is to provide college scholarships and medical expense assistance for the benefit of persons diagnosed with cancer, receiving treatment for cancer or in remission to give them a new purpose and meaning in life. The application and criteria are both available online. E-mail

Children's Special Health Care Services

This primary/supplemental insurance program helps defer the medical costs of children with specific chronic medical conditions such as cancer, sickle cell anemia, and hemophilia. There are also financial guidelines, but the income guidelines are more lenient than other programs. There is a CSHCS office located within Riley Hospital, on the 1st floor across from the Raggedy Man Gift Shop.

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Cancer Survivors Groups

National Wilms' Tumor Study Group (USA)

A national collaborative group currently conducting a Late Effects Study (LATE) designed to identify treatment related conditions that may develop in participants who were originally treated on one of our five clinical trials. The site includes a detailed bibliography, FAQ and patient information.

Beyond the Cure: National Children's Cancer Society Survivor Website

Provides information pertaining to all areas of the survivor's life. The Late Effects Assessment allows you to build an assessment of late-effects specific to your diagnosis and treatment.

National Coalition for Cancer Survivorship

The oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. E-mail

Cancer Survivorship Research (National Cancer Institute)

The Office conducts and supports research that both examines and addresses the long and short-term physical, psychological, social, and economic effects of cancer and its treatment among pediatric and adult survivors of cancer and their families.

Ann Haddix's Survivor Clinics

Childhood Cancer Survivor Program
Riley 4340
702 Barnhill Drive
Indianapolis, IN 46217
Coordinator: Ann Haddix, RN, CPNP, 317-278-0199
Medical Director: Terry Vik, MD, 317-274-8784
We see both Children and Adults
Clinic Appointments 317-274-2143 or 800-238-8399

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College Scholarships & Financial Aid for Cancer Survivors

Cancer Scholarships (FinAid: The Smart Student Guide to Financial Aid)

Provides information about scholarships for cancer patients, cancer survivors, children of a cancer patient or survivor, students who lost a parent to cancer, and students pursuing careers in cancer treatment.

Cancer Survivors Fund

A non-profit organization whose mission is to provide college scholarships and medical expense assistance for the benefit of persons diagnosed with cancer, receiving treatment for cancer or in remission to give them a new purpose and meaning in life. The application and criteria are both available online. E-mail

Oncology Nursing Society Scholarships

Since 1982, the Foundation has distributed more than $14 million in research grants, research fellowships, academic scholarships, lectures, public education projects, career development awards, and congress scholarships. Also, the Indiana Association of Pediatric Oncology Nurses (IAPON) offers a yearly scholarship; be sure to check early in your senior year of high school for the application.

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Fertility Clinics

Fertile Hope

Fertile Hope is a national non-profit dedicated to providing fertility information, support and hope to cancer patients through programs of awareness, education, financial assistance, research and support. The Fertile Hope website gives a comprehensive overview of the fertility risks associated with cancer treatment and the fertility preservation and parenthood options before, during and after treatments.

Genome Resources

A local company that does elective cryopreservation of sperm for cancer patients

Center for Reproductive Biology of Indiana

Infertility clinic that offers sperm banking prior to chemotherapy as well as helping with infertility issues after treatment for men and women.

Also, you are invited to share your Riley story at:
RileyKids.org

Site Design: Caroline Courtney