What is cancer?
Multiple Myeloma is cancer of the plasma cells
There's still a lot we don't know about Multiple Myeloma. That's why research is so important.
- Who is most likely to get Multiple Myeloma?
- What treatments work for which people?
- What causes Multiple Myeloma?
We'll mail you a kit!
One time: online or by phone
QUALITY OF LIFE
Every 3-12 months: online or by phone
APPROVAL TO LINK TO YOUR MEDICAL RECORD
So we can follow how your treatments go without you doing extra work!
- You are a male or female patient age 18 or older at the time of informed consent
- You have been diagnosed with or are suspected to have one of the following:
- Monoclonal Gammopathy of Undetermined Significance (MGUS)
- Smoldering Multiple Myeloma
- Multiple Myeloma
- Bony or Soft Tissue Plasmacytoma
- Primary Amyloidosis
- Plasma Cell Leukemia
- Other Plasma Cell Dyscrasias (including but not limited to light chain deposition disease, monoclonal gammopathy of renal significance, POEMS syndrome)
Frequently Asked Questions
2. How is the data secured?
Organizations that may inspect and/or copy your research records for quality assurance and data analysis include groups such as researchers from Indiana University, other universities, government agencies (like the Indiana State Department of Health), or private companies that work on developing new tests or treatments. Any published results from research on your sample will not identify you. There are other organizations that may access Indiana Myeloma Registry records and your information: the IU Institutional Review Board (or its designees) and state or federal agencies with oversight responsibilities for this research. Some data may also be provided to a government health research database for broad sharing with researchers around the world, but the data will not contain any information which could identify you.
3. Is DNA shared with anyone else?
4. Will the study change my treatment?
5. Does the study cost anything?
6. Will I get results of my DNA analysis?
7. Will my employer or my insurance company see my study information?